Monday, March 11, 2013

March 1-2

March 1 - Shayleigh got to spend the day playing with her Nonnie, Grammie, PawPaw and her cousin Gracie.  She was so excited to see them! She said Gracie & Jackson today and she is excited that her Uncle Beau Beau, Aunt Lib and Jackson are coming to visit today! She LOVES her aunts, uncles, and cousins! Her balance is getting better everyday and she is walking better and better each day! Her Nonnie, Uncle J, Aunt Lib and Uncle Beau Beau got her a baby doll on surgery day that dances to a song and has a port where you can download songs via ipod. (Basically, something super expensive that I would probably not have bought myself EXCEPT for such a special occasion). Shayleigh has always loved to dance. And sing. Unfortunately, the singing isn't back just yet, but I KNOW it is coming too! Back to the doll, we have discovered it and we LOVE it!! You press it's belly button and it dances and therefore so does Shayleigh. CUTEST thing EVER!! She also has a keyboard and you can push a button and it sets a beat. Great to dance to as well! So, she has started working on her dance moves again and we are thrilled!! My parents wanted to treat us to lunch today and we were debating on where to go so my parents made the mistake of asking Shayleigh. Her response "pizza."  So, of course we had to hit up Johnny's for the lunch buffet where Shayleigh stuffed her face!! Here are some of her newest words that she is saying: Gracie, Jackson, pizza, and peanut butter.


March 2 - We have a huge consignment sale here in Shreveport where I buy all of Shayleigh's smocked clothes. Don't judge. I am a penny pincher. If you donate to the sale, you get to shop a day earlier than everyone else. I have gotten all my family, my sister in laws mom, and my sis in laws sis in law from home involved too. They all come up and we make a weekend out of it. We had 10 people, 3 kids and 10 dogs visiting. Nobody stayed with us and we spent most of the day out and about. This was probably the FIRST day we spent so much time out and about since surgery. Shayleigh LOVED it! She was so happy to be out and about and was so happy to have the family around! While we were driving around town hitting all the spots the visitors like to hit (Burlington, Pietros, Boardwalk, etc..) I decided to "quiz" Shayleigh. I asked her what different animals said. Stuff she knew before surgery. She was able to tell me what a dog, cat, horse,cow, pig, and sheep said with minimal help!! I know it has to be frustrating for her because she remembers and knows EVERYTHING she was/did/said before surgery, but sometimes she can't always get it out without a little help/prompting. She is super patient and keeps trying and never gives up. That is one of the reasons I KNOW we are going to continue to see awesome things from her! We will continue to progress to our 100% complete healing. Our little trooper wouldn't have it any other way!!

Wednesday, March 6, 2013

February 25 - 28

February 25 -  Today was my first day shift back at work. She cried a little when I left, but the tears dried up really quickly after I walked out the door. I am glad she didn't cry for long, but I am sad that she didn't cry long too. HAHAHA. Shayleigh spent the day with my Mom. They played and went shopping and according to Grammie they had a GREAT day! She was sooo excited to see me when I got home. She rushed me as soon as I walked through the door for hugs and kisses. She normally isn't allowed to touch me until I have taken a shower, but since it was my first day back, I made an exception. I cringed while I made the exception, but I did it!! She wouldn't go to sleep tonight until I laid in the bed with her. Then, she woke up as soon as I opened the door to leave and cried. Nick went in there and told her "Mommy isn't going anywhere tomorrow so you will be able to spend all day with her."  He left the room and she cried for a second and went straight to sleep.

February 26 - Shayleigh was a trip today! She came up to me and pushed me back to lay down on her pillow on the cold floor and then she made me lay down forever while she covered me with blankets and jabbered on and on. She also has decided that when she wants me to sit down she grabs and pulls on my socks instead of saying sit down. She had a great day in therapy today! She took 10 unassisted steps for PT and she walked by herself into speech. Her regular speech therapist was sick for the day, but she walked into the room and walked over to her chair and sat down and looked at the speech therapist like "what do you want me to do now?" I am still sitting in the waiting room while she gets her therapy, but all of the therapists are good about coming out and telling me how she did for them. She ate a whole bowl of homemade strawberry ice cream with a SPOON tonight!! We had trouble getting her to sleep tonight. We started the process about 7:30. I normally rock her and sing 5 songs to her (Amazing Grace, Old Rugged Cross, Twinkle Little Star, Jingle Bells, and Jesus Loves Shayleigh) and then I put her in the bed. I did this and a few minutes later she cried. I sent Nick in and he sings to her and leaves. She cries. I go back in and bring her to the nursery to rock and sing to her. She lays quietly for a little while after I lay her down, but once again she starts crying. At this time, I am sitting at the kitchen table trying to pay bills and match insurance and EOB's (loads of fun let me tell you). It requires attention and I can't just get up in the middle of it so I sent Nick in to check on her. He sings to her again and walks out. We hear a thumping noise and I send Nick in to check on her. He sings and comes back in and the thumping happens another time with the same results. Nick and I are sitting in the kitchen trying to figure out what to do with her when we hear yet another thump. I send Nick to check on her and he whispers/hollars for me. I get up and come to her door and the door knob is rattling and juggling. She has crawled out of her bed and is trying to open her bedroom door. We stand by the door for a few minutes laughing and once we control ourselves we put on our "serious" mommy and daddy faces, open the door and say "what are you doing?" She is so smiling and so proud of herself. We give her hugs and kisses and put her back down then we both head back into the kitchen. We are talking and all the sudden Nick looks into the living room and whispers "Nikki look." I jump up and Shayleigh is crawling on the floor headed to the kitchen. She has crawled out of her bed, opened the door and is looking for Mommy and Daddy. She stops only when Cheyanne lays down in front of her, rolls over and "begs" for a belly rub. Shayleigh stops, giggles and rubs her belly. Nick and I are hiding and watching and trying not to laugh too loud. When she gets closer to the kitchen we both jump back from the doorway and sit down. She comes in the kitchen, crawls up to me, pulls herself up, and smiles, giggles really loud and hollars "Mommy!!" She is SOOOOOO proud of herself!! At this point, Nick and I are really trying not to be too proud, not smile too much and not fuss either! We give her kisses and send her back to bed. It is now 9:45 and we have therapy at 8:30 the next morning.

February 27 -  Although Shayleigh had an incredibly busy night last night, she woke up super happy and had another amazing day in therapy!  She waved today! She said "No" and "mine" (wish we could have waited on both of those words...haha jk) for speech therapy. She gave PT 5. She also worked and finished a 9 piece puzzle (a huge improvement from the 4-5 piece puzzle she worked last week). We know how blessed we are on a daily basis as we watch this precious little girl improve each and everyday! She is so amazing!! We were told that she may or may not come back to be the same little girl as before. We THANK GOD everyday that each and everyday we see our little girl come back! The SAME as before! Although, we never would have chosen this road for her (or us) we are blessed watching her and her amazing recovery. She is so strong and brave! So much more so that her Mommy and it is a blessing and honor to BE her Mommy and watch her improve bit by bit each and EVERYDAY!! All I can say is that God is SOOO good ALL the time!!!!

February 28 - Shaleigh had yet another GREAT day in therapy!! Her therapists are so impressed each and everyday by the strides she is making! Shayleigh told them today "I like it."  Before we left therapy, all of her therapists came out to talk to me and they were all super excited about seeing her Tuesday and seeing what king of progress she made over the weekend!! Today, she said "Nonnie", "Paw-Paw", "Gracie" and "baby brother." Shayleigh is super excited that Paw-Paw, Nonnie (my sister) and Gracie (my niece) are coming to visit for the weekend.